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Pillbox

After working through numerous scheduling conflicts, I finally had my visit with the psychiatrist today. And I finally had a chance to express to him everything that has been going on.

His first reaction was not what I had expected. Instead of generalized anxiety disorder or a medication reaction, my doctor seems to think I’ve had underlying panic disorder. He wanted to change my antidepressant to Effexor. I very kindly reminded him that my depression had caused significant weight gain in a short time. He changed his sights to Prozac. I stopped him there.

I didn’t think it was the antidepressant that was the problem. We just changed the dosage on my Wellbutrin and there was no change. None. Not better and not worse. But we haven’t moved anything around with my mood stabilizer or my anti-anxiety meds in six months or more. I told him that irritability was always the calling card of destabilization. And I’ve been a firecracker lately.

So I have some new things to add to my pillbox. Xanax, 1 mg 3 times daily, and temazepam 30 mg once daily. C.S. added a couple of nutraceutical add-ons to help.

My daily regimen looks as such:

Morning:
300mg Wellbutrin
1 capsule Cogni-flex
1 capsule Ubiquinol
1 capsule Adrenomend
1mg Xanax
100mg Lamictal

Afternoon:
1mg Xanax

Bedtime:
1mg Xanax
30mg Temazepam
150mg Lamictal
1 tablet Orthosept
1 capsule Quell
1 capsule L-glutithione
1 capsule Seditol

As needed:
2 puffs Ventolin
1 capsule Maxalt

Note: The nutraceuticals are not all aimed at mood support. I take some for heart support, weight management, and immune support. Some psychiatric medications lower white blood cell count and leave a person susceptible to infection.

I am also aware of the potentially dangerous interactions between several of these medications. Don’t worry. Dr. Husband (with some sarcasm) has vowed to look after me. Mainly, we’re concerned with too much sedation. Orthocept increrases Xanax and Xanax and Temazepam are both benzo’s. Temazepam isn’t forever – it’s temporarily treating the insomnia until we can get things under control$

If you see something I might have missed, let me know.

Holding My Medicine Hostage

If only there were chains...

Today was the big day. I was rescheduled to see my psychiatrist’s nurse. I had to beg my mother to babysit T.D. and bribe my father to drive me the 15 miles up there in rush hour traffic, but I made it.

Here’s the big deal about going to see my pdoc. He’s located 15 miles away, I don’t have access to a car because C.S. takes it to work, and I have no one to watch T.D.

To be honest, I don’t have a great relationship with my parents or siblings. We don’t feud anymore, but decades of doing so has left our relationships strained. The state of our relationship only matters a little. They aren’t very giving people, and each “favor” ends up being a debt that can be called for repayment at any time. I’ve known more understanding loan sharks.

My friends work. And I’m also very particular about who watches my son. I prefer mothers, experienced nannies and babysitters, or female teachers. Those seem like high standards for babysitting a kid for an hour, but I consider it to be reasonable for a child with PDD-NOS and a significant speech delay. Would you leave your baby with someone with limited experience with babies? Though T.D. Is not quite a baby chronologically or physically, the same principals apply.

I actually made it there early, despite the traffic. But, it was certainly a “hurry up and wait” situation. Not only did I end up waiting the 15 minutes that I was early, I waited an additional 15 minutes past my appointment time. That is 45 minutes that my father had to wait around in the parking lot for me.

And all for what? Exactly what I predicted – a pitiful, unproductive, and largely inconvenient appointment with a nurse practitioner who probably shouldn’t be dealing with the likes of me.

I outlined the problems and ineffectiveness of my medication very clearly for her:

      I’ve been so depressed that I gained 10 lbs in three months. She answered,

“That kind of weight gain is practically impossible on Lamictal and especially Wellbutrin.”

      Yeah, I know. Both of them are notorious for weight loss. I have a genetic predisposition for extreme weight gain. That’s why I chose them.

My anxiety is unmanageable. I have regular anxiety attacks over every little thing. I’ve developed migraines over this again.

I don’t sleep anymore, apparently. I’ve been taking supplements for insomnia and now they don’t work. I started taking over-the-counter medication for it, but you can only take that in moderation without risking frying your liver. So, now I’m stuck with increasing sleeplessness.

It’s been about 6 hours a night off and on for two months now, and has been every night for the last week. And some nights, it’s 5 or less. Last night, I slept 4 and a half hours. I used to become hypomanic when this occurred. Now, my brain and my body are so tired that I am in a perpetual fog where I am completely dysfunctional.

    My moods are all over the place and I am highly reactive. This began slowly about two weeks ago. It started as only certain things that could trigger an unpredictable response. I would laugh hysterically, cry uncontrollably, or fly into a fit of rage at the drop of a hat, for seemingly little reason. Now, it’s progressed into constant states of arousal. I’m either delirious with hilarity, extremely irritated, or crippled with depression.

The nurses solution? Increase the dose of Wellbutrin and let the doctor determine the rest two weeks from now. My suspicion? She’s not allowed to adjust any medication other than antidepressants.

So now I take my medicine like a good girl and hope that I can manage my life within my two week period of the waiting game.

I decided that I hate nurse practitioners masquerading as psychiatrists more than I hate doctors.

Ugh.

Called Off?!?!

I was prepared for my psychiatrist appointment this morning, for a change. With the help of my bipolar bloggers, namely Ruby and Manic Monday, especially when referring to the post The Case of the M&M Interactions.

I had determined that my medicine is not right for my current symptoms. I’m cycling faster and faster. And the irritability has returned. I’m not grumpy – I’m flat out pissed. And I’m always a ticking time bomb as a result. I can’t sleep at night and it’s hard to be motivated in the day. This med check, as annoying as they usually are, was absolutely necessary.

My doctor is located about 15 miles away, so it’s quite a trek to get there, and usually very inconvenient in my busy schedule. I arrived early only to discover that my doctor had just called off 10 minutes ago. It was absolutely enraged. I had dragged myself out of bed extra early, called my mother out to sit while T.D. slept, inconvenienced my husband to take me up there before he went to work only to be sent away. WTF?!?! I know things come up. But there was absolutely no consideration for his patients.

To make matters worse, I had to sit and wait an unacceptable amount of time to be rescheduled. Where is the level of professionalism in that office? I watched the minutes pass and knew that if I didn’t get out of there soon, C.S. would be late for work. And even worse than all of that, I had to push to be scheduled before my medicine ran out. That left me to be scheduled with Nurse Betty. I know what she’s going to say. The same thing she says every time I have a complain about my medicine, “We’ll keep you on these medications and see what happens. I’ll have you scheduled in a month with the doctor.” UGH! Why bother?! Wait, oh yeah. They are holding my medicine hostage.

I really hate doctors. Seriously.

When It Rains, It Bleeping Hurricanes

I swear to {insert deity here}, it’s hurricane season in my life.

The Car Accident(s) and the Untimely Death of “Sebastian”

I had saved my pennies and nickles for over a year to outright buy my first car, my dream car.  It was a 2000 Volkswagen Jetta Sport Edition.  Ultimately, he cost about $10,000 after sale price, tax, title, and a few minor repairs.  I named him “Sebastian” because it was a tough sounding German name, just like my beautiful German car.

Friday, May 13th, 2011 – the one year anniversary of a drunk driver plowing into the front of my house, which was one of the biggest fears I had.  That day, Sebastian took his first hit in a gas station parking lot when a lady who was relying on her backup sensor hit the car twice.  It was mostly cosmetic damage, but the wheel well was pretty messed up and the bumper was pretty much falling off.

Three weeks later, it was June 1st.  My husband was on his way home from work.  He had me on speaker phone and the phone went dead.  I tried to call but it went straight to voicemail.  A few minutes later, my husband called back and the first words out of his mouth were, “I was in a car accident.”  I freaked.

Are you OK?

I don’t know.  Man-speak for “No”.

Where are you?

I think you need to call an ambulance.

I don’t think I can.  I don’t know where you are.  I don’t know how you’re hurt.  I don’t know what’s going on.  Where are you?  I need a location.  I’m coming.

I arrived on the scene and it was encircled by police cars and an ambulance.  I approached it, and caught sight of Sebastian.  My breath was taken right out of me.  The entire drivers side was crushed in.  I didn’t see my husband.  I panicked.  The officers and paramedics looked at me curiously, and all I could do was shout his full name.  He was there, sitting on the traffic island.  His glasses were missing.  He had a cut over his eyebrow.  His knee was swollen and cut.  But he was alive.  And lucky to be so.  He suffered a concussion and whiplash.

He was far from OK.  I stayed up all night to watch him sleep.  He yelled at me to stop coddling him.  I missed work to care for him.  He was not himself.  My husband, usually stoic and stable, was having mood swings.  His personality shifted noticeably.  He insisted on going back to work on Monday.  So, we ended up back at the hospital on Tuesday.  He had post-concussive syndrome, and there was no determining when he would return to normal.

(At this point, I’m thinking he maybe never did.)

The Blame Game

The police report came out on Tuesday, implicating my husband as having run the light and therefore causing the accident.  I know him.  He has been driving for many years and all of them without an accident.  He has never violated any traffic laws; not at least when I was in the car.  There is no way in hell that he would’ve missed a red light, and attempted to cross four lanes of traffic.  The police didn’t even take a statement from him.  It was biased and one-sided because no one else was harmed.

Neither insurance company could determine fault.  Neither paid out.  Sebastian now resides on my in-laws family property, demolished.  But thankfully, we have a loaner car from my in-laws.

Not Needy Enough

As I had mentioned, I was laid off for two weeks between the school year and the summer program.  During which time we had to fork out $392 for an electricity bill.  Why?  Because the local energy assistance program put a cap on their spending and our local electricity company placed us on our their “budget” program while neglecting to notify us.  Their solution?  Reduce your usage.  Supposedly, my bill would drop.

It was a lie.  Two weeks later, we received a bill for $400!  I called our local electricity company to report the error.  We cut our usage down by 3/4th of what it was.  I did the math.  They miscalculated my bill by any excuse they gave me.  It’s based on an average of the last 12 months.  Bull.  That would mean we would be paying about $300 or so.  It’s based on your usage and a percentage of your balance.  Bull.  That would mean they were charging us three times what our usage was.  They even swindled us on the cost of our usage.  We called the PUC.  Their answer?  They can charge you whatever they want when you’re on the budget plan.

I called every local charity service in the area.  No one would help because we just weren’t needy enough.  We were forced to fork over the money or get shut off.

All while my husband was flipping out and blaming me for all of the things I did to cause this situation.  Getting laid off.  Not being able to get charity help.  Not applying for public assistance.

Category 5

I had a bit of good fortune this week and was asked to work twice as long as usual on Wednesday of this week.  It didn’t come without some hefty costs.

I was invited to join a field trip to the zoo.  My task was to push a wheelchair for one of my students who had a broken foot.  Most of you have not been to the Pittsburgh Zoo, so I’ll break it down for you.  It is a very hilly and large place.  I was asked to perform this task because I am one of the younger staffers and likely the most physically fit.  I did so in 90 degree heat for four hours.  I welcomed it though.  I needed physical release and the extra hours were a bonus.  I felt good because I could allow one of my students to participate in the event.  It came with a physical toll of extreme exhaustion.  For the first time in a long time, I was glad to be home.  All I wanted to do was lay down in my bed for awhile.

When I arrived in my bedroom after wrangling my son, I discovered that the work crew had left blow-in insulation all over my room – six inches deep in some places.  I wanted to sit on the floor and cry.  Everything was covered in thick layers of it.  It took me the rest of the night to clean it all up.

I wasn’t in bed until midnight.

I was up again, bright and early with extreme sleep deprivation.  I had to keep my appointment with my psychiatrist.  I was out of medicine and starting to feel the real effects of it.  Then, I would have to rush home to have speech therapy for my son.  After that, I was off to work again.  Except, that didn’t happen.

Because of the holiday, my husband’s pay was delayed.  We had $8 dollars to our name.  And he made my life a living nightmare.  I didn’t get to my appointment.  I didn’t get my medicine.  I just laid on the sofa and cried.  There was nothing to drink in my house.  Nothing to eat.  No money to get to work for either of us.

Due to the generosity of family, we made ends meet.  But not without a hard, long struggle.

Overlooked Medical Problems

My medicine needs adjusted.  I’m not well, and I haven’t been well for a long time now.  (As I’m sure you’ve noticed by now).  My throat has hurt for over a month now and I still have laryngitis.  I’m pretty sure I have tonsillitis.  And I may have damaged my vocal cords permanently as a result.

I will never be the same if I did.  My career will be ruined.  But if I don’t get some medicine soon, I may end up losing control and ruining my life.