One Day, I’m Going To Grow Wings

Let down and hanging around
Crushed like a bug in the ground
Let down and hanging around

Let down again
Let down again
Let down again

You know, you know where you are with
You know where you are with
Floor collapsing
Floating, bouncing back
And one day….
I am going to grow wings

A chemical reaction
Hysterical and useless
Hysterical and…
Let Down – Radiohead

Normally, I am not a fan of disclaimers. When looking at them from a psychological perspective, they are an affirmation of what is actually being said, instead of the deceit a person is trying to convey. For instance, phrases like, “I don’t want to be rude, but”, and “I’m not a (insert adjective), but”. The truth is in the disclaimer.

However, I must use one for these purposes, because these words and ideas may be misinterpreted. I do not blame my parents for all of my problems. I am well aware that I have the ability to be cognizant of and control my thoughts and subsequent behaviors. I pride myself on the self-control that I exhibit. These people are supposed to exist as part of my support system, and they parade around as such. It’s the martyr’s game. When push comes to shove, they always pull the net when I’m falling.

Here are the three most recent examples. November 2010, my husband and I were both offered employment at the same time. This had never occurred before. I went to my mother, overjoyed that I was offered this dream job. (My mother is a homemaker). I asked her if she would be willing to watch T.D. for the five hours that I’d be out of the house. She came up with a million flimsy excuses until I offered to pay her. And then, over the course of the school year, she paraded my son around the neighborhood under the guise that she was this amazing, selfless grandmother.

The possibility of being employed in the summer program came up. I was ecstatic. I mentioned this to my mother expecting the usual stoic response. Basically, she was rooting against me because she didn’t me to ruin her summer plans.

When it was first determined that I was not going to be employed for the summer program, she was overjoyed. Then, three days before camp started, I got a message inviting me to teach. And she once again, begrudgingly, took on the selfless task of caring for her grandchild. With the monetary bonus, of course.

Now, we are coming upon the school year once again. I had worked it out that T.D. would have services in the morning, get dropped off at preschool in the afternoon, and be picked up and taken into the care of my parents for the remaining time. Apparently, that was not on the agenda, although it was discussed at the beginning of the summer.

They never fail to let me down.

Our lives are so intertwined in terms of T.D. having strong affections for them, and us living on family property. I want to distance myself from these people as much as I possibly can. They are absolutely toxic.

My mother is a ridiculous and belligerent alcoholic. My father and I do not have a father / daughter relationship; I might as well be the mother of his grandson and nothing else. My parents offer no love or support without a price tag. And I can’t stand to be surrounded with such dysfunction.

I can’t believe I thought I could trust them. I can’t believe I thought I could trust anyone. (There’s some things going on in my social group involving disloyalty).

I’m ready to wall it up again. It’s easier this way.

I’m open to stories and suggestions.

Leep-Into-Cin – Part III

Warning: The following content can be considered graphical in nature.  It may contain material that may not be appropriate for certain audiences.  Children under the age of 18, those of the male gender, and others faint of heart may want to take extra care while viewing this.  Use your own discretion.

Bringing in the Big Guns

After the experience where I was left stranded on an operating table, I had grown animosity toward that doctor that performed my surgery.  I refused to see her, and I refused to go through any more procedures.  It didn’t matter.  I had lost my insurance again and there was nothing I could possibly do.  The only other option was to return to the clinic so that they could slowly kill me with their negligence.

I did break down and go to the clinic, but only for a required Pap to receive birth control.  I took the call when it came.  ASCUS, same news, different month.  I couldn’t face it.  I didn’t want to do it all over again.  But as usual, Planned Parenthood didn’t really take this news seriously.  I didn’t plan on going back anyhow.  The nurse practitioner butchered me during that routine exam and left me bleeding for a week afterward.

Finally, I had good health insurance and went to Magee Hospital Womancare.  By chance, I was given to a doctor that specialized in woman specific cancers.  Upon our first meeting, I didn’t care for her.  She was cold, calculating, and blunt.  She reviewed my records, took a pap, and sent my samples off to an Oncologist – the first time a real cancer doctor had ever seen my file.  I was relieved, but I couldn’t stand her bedside manner.  Her words were few and her work was rough and quick.  At least it was quick.

I got the good news of my first negative pap in years!  I celebrated!  The dysplasia was gone!  I rejoiced at having that burden lifted from me.  No more would I worry about growing more cancerous cells, as day after day passed.  I could live without constant concern of death.

Until April 2011.

I had neglected to get my six month pap and was coming upon my yearly pap.  The office tried to contact me and I missed several appointments.  I was very busy now.  I had just been accepted into my first teaching job and was responsible in the spring musical as the Music Director.  The very night of the show, Womancare tracked me down.  I paced backstage and scheduled my appointment for spring break.  I realized the urgency and knew I was running out of birth control anyway.

The pap was bad.  ASCUS, again.  There was no infection or alternative explanation.  Another colposcopy had to be done to confirm all of our fears.  I scheduled it for the first week in June 2011.  I knew I would be laid off by then and would have plenty of time for recovery.  But, as you know from previous posts, I had developed the flu which turned into pneumonia.  I missed the appointment, and rescheduled for July 15, previously noted in “All the Pretty Things”.

What I didn’t mention was the nervous bus ride into the city.  Nor did I mention the walk alone through Downtown, only mitigated by my bravery to do it alone after C.S. once again failed to attend at the last minute and serenity found at the fountain.  I laid on the table in the familiar position – feet in stirrups, staring at the ceiling.  I felt the vinegar sting the tissue inside of me.  I sighed.  Then, there was a feeling of a stab, twice that of a shot, and enough for me to lose my breath.  I heard the doctor say, “That’s not enough of a sample.” and then came another unbelievable stab that had me seeing stars.  I cried out in pain.  Just keep breathing, keep breathing.  The tears flooded to my eyes and another slice that felt like a twisting knife in my insides.  Breathe.  Keep breathing.  I told myself over and over, but I was choked with tears from the incredible amount of pain.

The doctor was uncharacteristically sympathetic.  She asked me questions, but I could not speak.  I could not catch my breath to tell her that I just needed a moment.  She offered me a cool towel and I declined.  She offered me a cool drink and I accepted.  I tried to get up, but she insisted that I lie back down for awhile.  I needed time for the apoxy to take hold to cover the internal wound.  I needed time for the cramping to go away before I should move.  She knew more than anyone else in my life that all I needed was some time.  I sipped the water, caught my air, and said to her, “I don’t remember it being quite that painful.  Then again, I don’t remember it being quite that fast either!”  I was trying to save face, but it didn’t matter.  She had seen the twisted look on my face with my eyes squeezed shut.  She asked about my condition and I told her I was OK and that I still needed to catch my breath.

I was still choking back tears.  I was ashamed that I couldn’t handle the pain and cried.  I was so alone.  I was furious that C.S. had not made more of an attempt to be with me.  But more than anything, I was sad that I had been let down again.  And I knew I would have to drag all of that physical and emotional pain down the streets of Pittsburgh, back home with me, and into my home to face my son alone.

All alone.

The Anticipated Call

The office assured me that we would have a result by Friday.  I knew what they were going to say.  I had hoped that they would say that it was CIN I, and we could wait.  But I knew it wasn’t.  Just like I knew in the beginning that I would be in the 10% where this doesn’t resolve on it’s own.  Just like I knew after the cryosurgery that this wasn’t the end of it.  I wanted to believe differently, but in my bones, I knew better.

Friday morning, I took the call.  I was in my mother’s kitchen while T.D. was downstairs watching Spongebob for the gazillionth time.  CIN II.  This time they wanted to perform LEEP because of my advancing age, history with this disease, and my current grade of dysplasia.  Seemingly, it was progressing faster this time.  Or else, the cryosurgery just didn’t take.  I knew all of these things, because I often have the power of foresight.  At least when it comes to my body and my mind.  But, there is nothing that can actually prepare you for the news.  There is also nothing that can prepare you for what you are facing.

The nurse I spoke to wanted to schedule a surgical consult before we proceed.  I was puzzled and felt some looming threat.  I had never been offered a surgical consult before.  Apparently, the doctor and I have a lot to converse about.  In the meantime, I am left my with racing thoughts and full internet access.

A Rock and a Hard Place

Each surgery presents the problem with damaging the cervix with scar tissue.  If enough is amassed, that may pose problems for future fertility.  The statistics say that cervical stenosis, the narrowing of the cervical canal, is about a chance of 1-2%.  But the statistics are a little more unclear when it comes to cervical competency to bring a fetus to full term.  The more they take of the cervix to remove affected cells, the thinner the cervix becomes, which destroys its integrity.  In summation: If I have this procedure, can I have the second child that I’ve been trying to plan for?

But what are the chances if I wait to have the procedure until after my second child is born?  Will I develop invasive cancer in the meantime?  Will they have to take my uterus if I decide to wait?  What is the risk?

It would break my heart to lose the second child I so desperately want.  But it would destroy my body if I were to have a hysterectomy, or worse, to face death due to cancer.

Another waiting game lies ahead.  I do not have my consult until August so I cannot have any of my questions definitiely answered until then.

The sword of Damocles hangs over my head.

All because of two complete assholes that I trusted and loved.

To be continued . . .

Somatopsychic

Definition of PSYCHOSOMATIC

  1. 1: of, relating to, concerned with, or involving both mind and body <the psychosomatic nature of man — Herbert Ratner>
  2. 2: of, relating to, involving, or concerned with bodily symptoms caused by mental or emotional disturbance <psychosomatic symptoms> <psychosomatic medicine>

We hear it so often, especially when relating to depressive symptoms.  Depression hurts.  Ever heard that expression?  Probably.  That is, after years and years of being called a hypochondriac, lazy, dodging responsibilities, neglectful, irresponsible, neurotic, uncaring, inattentive, a complainer, and a flat out liar.  You might still be getting flack for that, right?  I sure am.

We’ve touched upon the issue of bipolar depression and it’s limitations at Dailystrength.org’s Bipolar Support Group and again in Blogging Beepers throughout various posts.  Bipolar depression literally destroys us both mentally and physically.  It’s a proven fact that bipolar depression and hypochondria  have nothing to do with one another.  The aches and pains are real.  The exhaustion and fatigue are too real for words.  The headaches are blinding and are just as real to us as they are to you “norms’.  Depression causes a variety of symptoms that aren’t just made up in our heads.  And they sure as hell aren’t made up because we’re too apathetic toward our own lives.

I’m a control freak, much like Mwam who writes “I Was Just Thinking…”.  I cannot stand the idea of someone else having to take the reigns of my life.  It is my body; it is my mind – I can do, say, think, whatever the hell I want.  Except when I cannot physically or mentally do the things that I think and want.  I don’t put the responsibility on anyone else.  I don’t throw my kid at the nearest person because I’m having a breakdown.  I don’t let the bills go unpaid and I don’t let my house get to the point where it would likely be condemned.  I wear my stylish clothes, dash on that makeup, and I don the smile that you trolls love so much.  I keep on moving at MY pace, where the “norms” like it, or not.

Which brings me to Monday.  I noticed that I had been losing pace unusually fast, and my physical health had turned for the very worst.  Unusually so.  I had made a recent, but passing mention of a physical illness in, “When it Rains, It Bleeping Hurricanes”.  And since “To See If I Still Feel”, I’ve been making multiple mentions of a lingering depressive episode.

I bring you a surprising answer.

Definition of SOMATOPSYCHIC
: of or relating to the body and the mind; especially : of, relating to, or concerned with mental symptoms caused by bodily illness >

Shortly after the accident, I contracted what I thought to be influenza.  It happens biannually.  This year, it was the stomach flu at Christmas, and the body flu in the summer.  The year before it was H1N1 (or Swine Flu) over Halloween and “viral syndrome” (AKA summer flu in doctor-speak because, they don’t seem to think anyone can catch the flu outside of flu season).  I hate it, but that seems to be the rhythm of circulating illness.

Anyhow, during this June influenza, I developed laryngitis, and as a music teacher, this is bad, bad, bad news.  As a wife of a man who has diagnosed hearing loss but is too vain for hearing aids, it was the most aggravating thing to ever happen to me.  99.9% of As the Pendulum Swings readers have never met me, seen my face, or heard my voice.  I am very careful to preserve anonymity.  (Yeah, come find me among the 1,223,348 people that live in Allegheny County, PA!)  I’ll tell you this.  I am a 5 foot 1 inch powerhouse of sound.  If I were a stereo, my speakers would be larger than I stand.  I don’t need a microphone in assembly halls, cafeterias, stages, or theaters.  Literally.  So having the mother of all sore throats that preventing me from speaking at all was a challenge.

But this continued for over a month.  I didn’t want to see a doctor because I knew I would get all fired up when they told me it was something stupid like allergies, asthma, cold, etc that could not account for these symptoms.  But they would.  Because I’m a big flippin’ hypochondriac.  And I would’ve been a whining drama-queen who blew my symptoms out of proportion just so I could go on being lazy.  Over the last week, though, I noticed that I started to lose a lot of traction.  My throat felt like there was glass in it, I had a half an octave surrounding my speaking voice, I was intermittently running a low grade fever, and I had a super sensitivity to changes in temperature.  I noticed my behavior changing.  I started letting go.  I let my kids in my classes have free periods.  I couldn’t go three hours with the dire need to sleep.  I let my kid destroy the house and hardly said a word to him.  I couldn’t.  My throat hurt so bad that I would only talk when it was absolutely necessary.  But when the shortness of breath came, I knew that wasn’t anxiety or any other psychosomatic symptom.  I literally wasn’t getting enough oxygen into my body.  And I started to feel it – HARD.

My husband pretty much reluctantly took me to the local urgent care after he got home from work yesterday.  He kept saying, “It’s up to you, it’s up to you.”  Manslation – I will take me if you tell me that I have to.  It turns out, I have (drum roll please!):

Walking Pneumonia!

Walking pneumonia with acute bronchitis complicated by history of asthma, as a secondary infection to influenza.  And do you know who invited this illness into my ecosystem?  It wasn’t the children.  It was the dirtiest, nastiest, smelliest, most abominable creature I have ever encountered – Rs (we’ll call him).  Rs is my husband’s estranged best friend who recently made reconciliation.  When this guy comes around, it never fails that someone becomes deathly ill.  One year, we thought he gave C.S. SARS because they both had respiratory infections so badly.  (Neither confirmed, nor denied.  No one had health insurance).  C.S. was almost too sick for our first Valentine’s Day.  The only person in my family Rs hasn’t gotten sick yet is T.D.  And if T.D. ends up in the hospital because of that misogynistic germ breeder, there will be hell to pay.

As my doctor is giving me this information, the light bulb goes off in C.S.’s head.  “Oh yeah, Rs had that about a month ago!”  Smooth operator there, Einstein.  You could’ve killed your wife who seemed like the only person susceptible to this illness!  And speaking of, how was I the only one who got any of these illnesses in the first place?  Oh yeah, because I don’t have an air conditioned bedroom, I sleep next to the fan, I spend at least two hours a day in the elements in my commute, I don’t sit at a desk all day to do my job, and I chase after a hyperactive toddler all day.

“This bleeper is going to get an eyeful when I get my phone back.”  Yes, I was sick enough to leave my Blackberry, which is normally an electronic appendage, at home on the desk.  The text message conversation looked a little like this:

So it turns out that for all of this time, this entire month, I have not been having an episode.  My psych meds were ineffective because they aren’t made to treat somatopsychic illnesses, like pneumonia caught by a music teacher who just so happens to have bipolar disorder.  Only the Z-pak, 60mg of prednizone, and sucking an albuterol four times a day is going to cure that.

I will never let anyone call me a hypochondriac again.  Eff you “norms”.

Riding in Cars with Boys

When I was a little girl, my parents would often fight in the car with both my brother and I in it.  It was always the most distressing experience.  My father would fly off the hook about something, and my mother would beg him to stop screaming in the car and driving like a maniac because we would get into an accident.  My brother has autism, and as a little boy, he would hit whoever was closest to him – hard.  If he hit my dad, he would freak out even more.  If he hit my mom, she would just go silent.  And if he hit me, I would cry, and it would largely go unnoticed because of the bigger problems at hand.

Anyway, it was a disastrous event, every time it occurred.

Eventually, I became old enough to decline invitations to go places and was happy to do so.  My domestic life was dramatic enough without having to take it on the road.  My mother explained to me that my father did this to her on purpose.  Because she was so passive, he would trap her in the car so that she couldn’t avoid the ensuing argument.  Not a bad plan, other than the whole prospect of getting into an accident.  (Which we never did, by the way.  My father, at 61, still has yet to get into an accident that he caused.)

I have found myself in similar situations throughout my years of being a passenger in a car with a significant other.  I had one ex who found the car was the only place he wanted to fight.  He would dodge everything until the key was in the ignition.  And for maximum results, he would take a crowded highway.

I am not my mother’s child.  I am my father’s child in every way, minus most of my physical appearance.  I am not passive, although I can be passive-aggressive.  I have fought to get this far, and I’m not going to lie down anytime soon.  I am highly reactive (probably a product of bipolar), and can take a hint better than most.  I am an empath.  I can feel what’s going on around me, even without words.  So if someone is going to take a stab at me, they better hope they don’t miss.  Because, I’ll be back with chainsaw.  On a non-deep-down-dark-depressive day.

 

Back to the chronological narrative.  After my husband witnessed all of the direct deposits being dumped into the account on Friday, all was well in the world again.  At least his.  I don’t get over things easily.  It’s hard for me to forgive, and I will NEVER forget.  But when he became a little more easy-going and wanted to actually spend time with his family, I started to feel a little better.  We had friends over on both Thursday and Friday after the recent disasters.  C.S. puts on a fantastic show.  It’s like Who’s Afraid of Virginia Wolfe, truly a dinner theater-type show to behold.  I am less inclined to play pretend when I feel it’s too much of a farce.

Saturday morning came and he was springing to life with ambition for family time.  He was intent upon taking our son (I’ll start referring to him as T.D.) to the museum.  Outings are always a to-do and stressful to get out the door.  Yes, with the man who is perpetually late.  When I die, this man will be late to my funeral, if he makes it at all.  His man will be late to getting to the pearly gates before closing time for the day, and he’ll stand there and sweet-talk Saint Peter into at least sneaking him in the backdoor, while also taking some money off of the cover charge.  That is C.S. in all of his glory.  But when it’s something that wants to do, he’ll be flying us out the door.

“Check the mail.”  Always an obsession with the mail.  You know, there is nothing ever in there but junk mail, bills, and boasting / nagging letters from his annoying, pompous bitch aunt.   (There, I said a swear.  She’s a bitch.)  But no matter.  I grabbed the mail and knew by the scrawl on the front that this was the results from T.D.’s evaluation, addressed: To the parents of T.D., Pittsburgh, blah, blah.  I told C.S. what the contents were and was about to throw it inside.  But I knew that it would gnaw at me until I returned to find it there.

“I have to read it now,” I thought.  So I dropped it in my purse and hauled it off to the car with the rest of the 50 pounds of supplies and junk we need to go five feet from our house.  My doing, mostly, I’ll admit.

As we drove through our town, headed for the gas station, I opened the letter.  I scanned through the first few pages, because I had seen them before.  My husband started hounding me for information and I started to give it to him as I was reading it.  When I got to “The mother filled out a questionnaire to assess Autism Spectrum Disorder…” he went off like a firecracker.  “How could you fill those out… I’m his father too… he  act autistic like what you say… you just said those things to make it seem worse… I should have a say… You aren’t allowed to fill out any of those questionnaires again…”

We pulled into the gas station and I fired back, “Is it going to be like this the whole trip?  I will get out of the car right now and walk myself back home.”  He refused to answer.  “I had to fill those questionnaires out.  It’s part of the evaluation.  I’m doing what is right or our son.”  He growled, “We won’t talk about this here.”

I don’t think so!  Absolutely no one on this planet will ever silence me.  I don’t care if that person is the President, or even the Pope.  No one has the right to take away what I want to say and where I want to say it.  Second, you don’t start an argument with me and then attempt to silence me!  If you started it, I will be sure as hell to finish it.  And third, no one, and I mean, NO ONE on this planet, father or not, will tell me what I’m doing with MY son.  I carried that little boy inside of me for a grueling 38 weeks.  I spent 13 and a half hours in agonizing labor (is there really any other kind?) to bring him into this world.  I bear the physical scars of motherhood on my stomach and other lady parts.  And I have spent the majority of his life raising him practically alone.  I believe that I have earned the right, even if it wasn’t given to me the moment I saw that digital pregnancy test light up as “pregnant”, to do what is needed and best for my son’s health and well-being.

We fought for 10.4 miles.  I google mapped it.  It was this awful back and forth.  C.S. insisted that he be present at every evaluations and that an evaluation couldn’t be done without him.  I bitterly asked him what was the sudden change of heart after he failed to be at every other evaluation.  It was my mother and me, his two primary caretakers and the only two people in T.D.’s life that are well-versed in developmental disorder and mental illness.  “What gives you the right now, after all of this time? Out of the 14 awake hours T.D. has, I care for him 6 hours of that solo and another 3 with you lingering around.  The other five belong to mom, who watches him so I can close the hole in our finances.”  He gets on the defense about how that isn’t his choice and how someone has to work.

I wanted to scream at him that is was his choice.  I was working and all of a sudden, he decided after 8 months of being laid off that he wanted to go back at any cost.  And I still worked after that.  The only time I didn’t spend working at least 15 hours a week was during a portion of my pregnancy when I wasn’t doing well enough to work, and then I became to pregnant for anyone to hire me.  And after I had T.D., when I was very sick from what if physically and emotionally took to bring him into this world.  Now, I can’t work more than I do because someone, meaning me, has to be at home to take T.D. back and forth to therapies, special schools, and be at home for in-home services.  I have done nothing but devote nearly every available waking moment to T.D.  He wasn’t interested before, and I had resigned myself to being a single parent inside of a marriage.  (And believe me, there ain’t a lot of outside help to us married gals, even the ones with bipolar who have children with special needs).  Why now?  You know, all of a sudden when someone wanted to slap a label on him.

I went on to tell him about the rest of the contents of the letter.  He was very silent for a moment and all he had to say for himself was, “Oh.  You didn’t say that before.”  {Insert insane cursing here}.  How could I have possibly been able to do so, when the first three lines that came out of my mouth were met with such a colossal storm of rage, berating, (because that’s his favorite), and threats?

I gave him the points that I couldn’t make before.  This diagnosis opens up the doorway to treatments and funding that T.D. would not have otherwise qualified for.  We are both agreed that he needs extra help, and that even if they go overboard, it can’t hurt him.  Labels don’t carry the weight that they did when we were kids.  In fact, when we register T.D. for school, no one will even have to know about this.  Legally, no one has to know.  We don’t have to tell anyone.  Not our friends, not our family.  We don’t even have to tell his pediatrician if we don’t want to.  (And largely, no one does know.  Two close friends, his therapists, and our parents).  There doesn’t have to be a stigma, and there is so much awareness now that there isn’t one.  This diagnosis, this label, does NOT make T.D. any different than he was yesterday or the day before that.

He was relieved and the conflict was resolved.  For now.  I find it disturbing that the only thing my husband seemed to care about was the social stigma that could result from carrying a PDD-NOS / ASD diagnosis.  But then again…

Who’s Afraid of ‘Gina Wolfe, ‘Gina Wolfe, ‘Gina Wolfe?

(NOT I).

Adding It Up

The Chicken or The Egg

I’ve had this talk with my psychiatrist before. What begets what, exactly? Does the episode precipitate certain events based on behaviors or does the environment spark the episode?

There’s really no clear cut answer. My largest concern has been what seems like constant fatigue and body aches. Yes, those are symptomatic of a depressive episode, of which I am especially prone to. The doctor asked me, “Well, you tell me that you are a mother, you work, you go to school, you are a wife, and you are responsible for domestic duties. Consider the amount of stress you are under and your lifestyle in general.”

I have considered those things.

Breaking It Down
Let’s take a tour through my average day. I wake up and am solely responsible for getting my son out of bed, dressed, fed, and ready for the day. Three days a week, we have either Occupational Therapy, Developmental Therapy, or Speech Therapy. My son has Sensory Processing Disorder and likely Pervasive Development Disorder. But he’s too young to have a definitive Autism Spectrum Disorder diagnosis.

We do that, get him off to the babysitter, and then I have to make the mad dash to get ready and out the door for the hour commute to work. Then, there’s the whole matter of navigating Port Authority, Pittsburgh’s “premiere” public transportation system. For those of you who live in or near the city, I’m sure you’ve had at least one memorable encounter. Like when the bus was especially early or incredibly late. We all know this doesn’t work when there’s a connection in town. And in most cases, there is. It’s always a nightmare.

Honestly, work is the most enjoyable experience in my day. It’s mostly stress free. There are usually two or three teachers per classroom, which makes behavior management so much easier. Most of my students come in focused, enthusiastic, and ready to learn. And all of them are loving and affectionate toward me, much like I am toward them. My boss is great. She’s a very hands off boss who trusts her employees to run their own classrooms. My co-workers are hilarious and warm. Everything about that place feels like home and family.

This is not to say there aren’t problems. My students still have behavioral difficulties. Sometimes, I do have co-workers that rub me the wrong way or interfere in my lesson more than they should. New policies are implemented that I don’t like. And my boss doesn’t always give me gold stars. It’s just like any other workplace. The only exception is that I like what I do, the people I do it with, and where I do it. Makes it a little easier to bear.

Another hour to an hour and forty-five minutes to get to the babysitter’s. We go home and I get to cleaning and cooking. My husband comes home, we eat, and then the rest of the night, it’s up to me to care for our son.

And that’s my day. I usually have a couple of hours to fight sleep because that is the only time available for me to unwind. Sometimes, I just pass out from exhaustion.

Doesn’t sound like much to some of you, huh? I’m sure there are a decent number of readers that will scoff and say, “I do waaaay more than that in a day.” Yes, you likely do. And that is the core to this.

Adding It Back Up
Bipolar Disorder or too stressful of a lifestyle? Or both? Could it be possible that I take on more than I, personally, can?

Which brings me to the core of this. I get a lot of flack for not living up to expectations, or what others perceive to be “laziness”. And I think to myself, “Why can’t I do it? Why can’t I take on everything without having a breakdown?” Sometimes I can, and sometimes I can’t.

What I exampled above it only scratching the surface. I’m not going to go into a novel sized, pity-party sounding recount of every single snag in my life. Just add in all of the incidentals. A large unexpected bill, a tough toddler day, a rough patch in my marriage, a hard day at work, family troubles, financial difficulty, etc, etc. You can draw from your own experiences and know that there is much, much more.

Honestly, why can’t I perform all of the tasks and duties required of me? It doesn’t sound very complicated. Although, to me, it is. So I push myself harder. I medicate myself more, because I am convinced that my lacking is a result of my dysfunction.

In Reality?
Which is which? Can people without disorder handle everything? Or is this deficit actually a result of dysfunction? And if it is, can medication actually resolve that?

Or is it the reverse? The dysfunction is caused by overload and can only be resolved by reduction in responsibility and stress through delegation. And how do you go about telling people, “I need help. I can’t handle my life.”?

Shifting Gears

For the last two days, I have had the pleasure of describing to you bipolar depression through my very own eyes.  However, there has been a sudden shift.  And I’m actually terrified, for the first time, by a mood swing associated with my illness.

I know the signs.  I’ve been tracking them carefully for the last two years, meticulously recording them in journals.  I generally know the rhythm too.  A depressive episode will surely follow a manic episode.  That doesn’t not mean that I cannot have two depressive episodes in a row, but there is often a moratorium, varying in length that punctuates these episodes.  I have never experienced what I am experiencing now.

Yesterday, I described that the mood was lifting, little by little.  By midnight, I wasn’t tired.  It’s not too uncommon.  I’ve been known to pull longer evenings up until about 2 am.  But 2 am came and went and I was wide awake.  3 am passed without another thought.  I was caught in a flurry of ideas and determined to get them into some semblance of existence before they scurried away.  I wanted to share these ideas.  Yes, in the middle of the night.  4am came and I had to try to sleep.  I laid there, and laid there.  Finally, sleep came.

I jumped out of bed at 9am.  And for the first time in a very long time, I was ready to take on the world.  Although I was a little groggy at first, I was not at all missing the lost hours.  I was up for any challenge.  I felt like I was on top of the world!  I could finally finish everything I started and do everything that I never thought that I would find the time for.  I would spend time with my family and clean the house and cook dinner and… on and on.  I went to work with great enthusiasm for my students today and a firm hand at disciplining them.  I was in control.  I could do anything!

It hit me at about noon, when I wasn’t getting the least bit tired.  This may be the start of a manic episode.  The pieces were all there.  It was just up to me to put the picture together.

I often dread manic episodes when I see them coming.  I know that a debilitating depressive episode is on it’s way if the manic episode is particularly intense.  But once I’m in it, I don’t think of any of that.  I don’t think about tomorrow.  Nothing bad can happen to me.  Because I can handle it.  I can handle anything that comes my way.  And I’ll do it all while being charming and looking fabulous.  Besides, things, no matter how bleak, always seem to find a way to work out.  I can work it out without a doubt.

Reality ceases to exist in a manic episode.  Everyone is my best friend.  All new experiences are good experiences.  I require constant stimulation, and usually in the form of some creative outlet or though exchanging of ideas or information.  I become impulsive.  I’ll go somewhere for no reason.  I’ll call someone I haven’t talked to in ages for no reason. I’m so creative and alive!  I’M FINALLY ALIVE!

There’s rarely a downside to my manic episodes because they are usually hypomanic in nature.  I don’t gamble because I think it’s a waste of money.  I have the impulse to shop, but there’s never any money in my bank account anyway.  Sometimes, I’m hypersexual, but I won’t jeopardize my marriage if my husband isn’t willing to cooperate.  Sometimes I fantasize about it.  But that doesn’t hurt.  Usually, I just take care of business by myself.  It’s enough to tide me over until I can get the hubby to give in.

That’s not to say that there aren’t downsides at all.  If I am manic and in an extremely elevated mood, I have the tendency to become very irritable.  Especially when things start going wrong or someone tries to make me feel bad or antagonize me.   Believe me, it doesn’t take much.  And that’s when the impulsiveness becomes a problem.  I find myself compelled to do unreasonable things.  I’m pretty pissed at my husband right now.  We had a fight.  I’ll leave it at that.  He unfairly blames me and criticizes me.  I have a list a mile long for you, buddy.  I want to wake him up and pick a fight.  I want to start a riot.  I want to take a stand and pull out the couch downstairs so he can see that I’d rather sleep on a fold out couch than be remotely near him because I’m so disgusted.  I want to force these issues that he desperately wants to avoid.  Especially, my illness and our son’s special needs.  I want to get back at him for all of the times he made me feel bad and made my depression deepen.  I want to cut him out so that I don’t have to deal with his shit anymore.

I won’t.  I might if it keeps up.  Or if this manic episode gets any worse.  I don’t suppose that it will.  If it’s mixed, and I suspect that it might be, then I’ll be back in the throws of depression tomorrow.  But in the meantime, I’m not going to let him take me down.  I’m sick of it.  He’s a selfish. self-absorbed, arrogant, bastard-coasted bastard with bastard filling.  And one way or another, he will pay.

See?  Just two days ago I wouldn’t have been saying that.  I would’ve been moping and crying about how he yelled at me.  And how I love him and if he’s supposedly loves me, then why doesn’t he recognize my illness and why does he do things to make it worse?  I would’ve been trying to work it out instead of starting a war campaign.

We’ll see where this goes.  I love mania.  It helps me do all of the things I want, be a super person, and do the things I can’t when I’m just me.  And that’s what makes it dangerous.

Distractionary Tactics

My son had Occupational Therapy today.  I attended.

It’s so difficult to look these professionals in the face and tell them all about my son’s accomplishments for the week.  I wonder if they can look at me and know.  Sometimes they ask how I’m doing, I guess to bait me.  And I hide under the guise that I’ve recently been ill.  That’s not a complete lie.  I had the flu last week and continue to have laryngitis into this week.  Do they still know?

My interactions with my family members have been strained.

My husband discovered my wounds.  There was much silence surrounding the issue.  I wish he could understand.  I wish that for a moment, just one moment, he could feel what I feel.  I want him to be able to connect with me, instead of ignoring my illness when it manifests itself physically.  I feel very alone.

My son is too young to understand what is going on.  I have been difficult with him, just as much as he’s been difficult with me.  Dealing with him in the terrible two’s when he has limited speech is exhausting and frustrating.  I wish every day that he would just wake up and speak to me.

I expect too much.

I dressed, covered my wounds, and went to work.

I was called back to teaching music in the summer program.  I’m glad for it.  I get stir-crazy when I’m home all day.  I can’t seem to find enough things to fill the day with.  I need the distraction.  I cannot be alone with myself for too long.  Except, I spent all weekend trying to find ways to get out of it.  I didn’t think I could do it.  I was in no shape to go teach elementary school children.  What if they could see the deep, dark sadness on my face?  I can’t explain that to kids.  And telling them that I’m sick won’t suffice.

I saw their little faces.  Some ran to hug me.  We smiled.  I was so happy to be back, despite the heaviness of my heart.  It was enough to pull me out of it.  For three hours, at least.

Rinse and repeat.  Until I’m once again alone with myself on Friday.